It's wrong to see anyone have to struggle through/with the system like that.
I'm hoping that in the rest of the UK the equality duties will start to have the same impact that they have in Ireland - public services are contracted out less and less to private sector organisations because they are not compliant with the duties. So more control and co-ordination remains with the public authorities.
I hope you make some headway soon. Ad astra per aspera
I'm kinda of the thinking that the problem is not enough in the way of provide/decider distinction, and the NHS just doesn't offer a way out of the problem. It always feels to me as though once you step into the GP's office with your symptoms, your choice is limited to either accepting or declining treatment, and little else.
I think that I'm of the generation which is going to find getting on with the current way of working to be very difficult. Member of the Anti-Fabulousness League since 1987.